Thursday 9 September 2010

Seeing things that aren't there - Charles Bonnet Syndrome

What is a Charles Bonnet Syndrome?:

Though not a specific eye condotion, Charles Bonnet Syndrome (CBS) is the term used for the situation when people with sight problems have vivid and recurrent visual hallucinations and see things that aren't there.

CBS was first described by Swiss philospher Charles Bonnet in 1760 when his almost blind grandfather noticed seeing a range of birds, objects, patterns, buildings and even people that weren't there.

CBS affects people with serious sight loss and usually those who have lost their sight later in life.

Symptoms:

Visions can range from regular patterns, like brickwork, lines or netting to more complex pictures, objects or people, even whole scenes.  They can be in black and white or colour and objects can appear larger or smaller than the real life equivelent.  These hallucinations are purely visual and don't stimulate other senses such as smell or touch.  These images seem to appear out of nowhere and can last for a few minutes to a few hours.

It is thought that between 10% and as many as 40% of people with sight loss experience Charles Bonnet syndrome. The exact number isn't known as many people don't admit to having hallucinations for fear of being labelled mentally ill, which they are not.

 Causes:

Little is still known about Charles Bonnet syndrome and what causes it.  It is still unknown exactly how the brain processes images but it is thought that the syndrome affects people who have lost sight because the brain is no longer processing incoming images, so it releases old, stored pictures, to make up for the lack of visual stimulation.

Treatment:

As the exact cause is unknown, other than the brain "playing tricks" on the sufferer due to underlying sight problems, there is no actual cure.  However, most cases generally disappear after about a year to 18 months.

Hallucinations can be quite disturbing but as long as the sufferer understands that it is just the sight loss causing the visions, then ignoring or coming to terms with them can be the most effective way of dealing with them.  Sometimes the pictures can get in the way of what vision the patient has left, so can be quite problematic.  Some suffers find changing conditions, such as turning on lights if its dark, blinking, changing position (standing up if sitting) etc can "reset" the vision and get rid of the hallusination.

Other health conditions can cause hallucinations, such as Altzheimer's, strokes or mental illness but suffers should be aware it is their vision problems causing the syndrome.

Links:
For a more detailed and expert opinion visit:

Wednesday 8 September 2010

Free Audio Books

Audio books are a great resource for the visually impaired and blind who have trouble reading.  With many outlets such as Amazon and the new Apple iBooks in iTunes, the number of books in a variety of genres is growing.  The advantage of audiobooks over using a screenreader to read the text to you is a specially recorded narrator reads the book rather than bein read by the screen reader's computer generated voice.  Books are available in a number of formats depending on the equipment being used for playback, such as CDs, cassette tapes, downloadable digital formats (eg MP3).

Whilst most audiobooks, newspapers and magazines are paid for there are a number of downloadable books available for free.  Copyright laws mean that many classic books are now in the public domain and can legally be distributed freely.  Well known books such as Tom Sawyer, Alice in Wonderland and Sherlock Holmes and authors like Jane Austen, Charles Dickens and H.G. Wells can all be found in audio formats at no cost.

The British charity Listening Books distributes a library of cd's, internet streaming or downloadable audiobooks for people who have trouble reading.  The service costs as little as £1.67 a month.  Members have free access to the ever expanding free library of fiction, non fiction and national ciriculum textbooks from the download service.

Below is a list of some of the many web sites that offer free audiobooks:

Audio Books for Free
"MP3, iPOD and DVD audiobooks (adventures, detectives, horrors, classics, children, non-fictions, philosophy, etc.) for you to download and enjoy.

Every audio book produced and recorded by professional actors/narrators and experienced directors. No computerised text-to-voice convertions have been used."


Books Should Be Free 
Hundreds of classic audio books in MP3, iTunes and iPod formats in genres such as adventure, science fiction, history, childrens, poetry and many more.

Learn Out Loud
"LearnOutLoud.com has scoured the Internet to bring you over 2000 free audio and video titles. This directory features free audio books, lectures, speeches, sermons, interviews, and many other great free audio and video resources."

NewFiction
"NewFiction offers a library o$$$◘f audio books that are performed by multiple actors. We call them iSoaps. Consider them modern-day radio dramas."  Subscribers get an update of these "iSoaps" delivered to them daily.

Open Culture
"The best free cultural & educational media on the web" with a free audiobook section. Focuses on education, including online courses and language lessons.

Storynory
Specializing in books for children, including classic literature, fairytales and educational books.

Thought Audio
"Our journey has always been one of making classic literature available to anyone willing to listen, and now in this next phase, to expand our scope to include more thinkers, writers and essayists."

Podio Books
Serialised contemporary audiobooks.

Gutenberg Project
"Project" Gutenberg is the place where you can download over 33,000 free ebooks to read on your PC, iPad, Kindle, Sony Reader, iPhone, Android or other portable device." Also has an audiobook section.

Many of the audiobook sellers, such as Talking Book Store,  do trial offers or free samples for becoming a member, so are worth checking out.